Monday 24th October Today the doctors came to speak to me. They said the colonoscopy showed that I had totalcolitis and that my full colon was completly inflammed, this I knew after having asked the nurses how it went after the colonoscopy on Friday. They were also concerned because I haven't been responding to the…
Teary eyes and heavy heart 😢
Just had to say 'see you soon' to my mum. I hate these moments! That heavy feeling in my heart before we leave, then waving as train drives off. It doesn't get any easier and today really wasn't easy, I wasn't ready...at all! Of course I know she had to go back home but I…
Drugs, hot chocolate and mum
Had a couple of tired days now, so it's been nice just laying on the sofa relaxing, reading my book, doing some sudoku, and talking to mum and Axel when he's been here. I've finally taken my last cortisone tablet after being on it for 6 weeks. I am very happy to be off them…
💤
Evening all, today's been one very tired day. I over did it yesterday being over ambitious with the amount I could handle in one day so I slept like a baby last night and been extremely sleepy all day. I had a strange dream that Axel came home with about 10 people , 5 of…
My first first 😊
Tonight I ate out for the first time since my operation and the first time in I can't remember how long! We ate dim sum, first time I tried it too! Some of the dishes were really tasty! At first my old feelings of fear kicked in - where's the toilet, I hope the queue…
First night at home
Wow it was so nice getting home again, being around my own belongings. I was absolutely exhausted all afternoon and evening though , so much to take in. It's crazy how quick you get institutionalised after being in the hospital too! My emotions got a bit crazy too and it hit me just how big…
Freedom!!
Freedom!!!!! No more hospital bed, no more million check ups, no more hospital clothes, I have been released ! ! It's crazy how much crap you can gather over the space of two and a halv weeks! Although two of the bags are medicine and help stuff! Feels amazing sitting on my own sofa, listening…
New friend
Got a new friend for probably about a week. I'm not so keen on friends who prod my privates and dangle in the way a bit uncomfortably but hopefully I can train my brain/ bladder/ nerves to wee on its own with help of this sexy accessory! Not the most comfortable thing but I'll survive.…
Tapped again
So annoying! I've been able to wee during the day, maybe not as much as they wanted to but I've been able to and then comes night and my bladder just says no. I've tried all night to wee, put my hands in water, feet in water, listening to dripping water, squatting , reading my…
Passed
Tonight the nurse said I've past my bag training ! Woohoo!! I wouldn't say it feels normal but I'm getting used to it! And it's one step closer to home, I hope! 🙂 Gone pretty fast gettig the hang of it id say. Now I'm gonna have some no evening snacks and hope to wee…