Nervouuuus!

This morning I got up with Axel and laid on the sofa enjoying the way our Christmas decorations brought some lovely comforting light to the dark winter morning. My day ahead looked very calm and peaceful, just relaxing all day (which is needed) and a lovely trip to have lunch at work. I've been looking…

Calls and plenty of pictures

Had the joys once again of waking up and chatting to a good friend this morning. I am so grateful for the internet and video calls, it makes it so much easier being away from friends. I can't wait to go back home (England home) and see them again. It's tough being away from them…

Crazy dragon, psycho mood secrets

So here it comes. My embarrassing confession. The other me. The other side of things. The truth of last weekend. Last weekend I was a mess. I had an agonising toothache, I was exhausted, I was uncomfortable, and I was cutting out the morphine. In other words, I was an emotional, unstable, hurricane of a…

Another day, but this one with some sunshine

I rang the referral clinic as soon their telephone line opened today at 10 and surprise surprise got the lovely recorded message that they would be back again at 10 on Monday. What a load of bullshit! Again I got so upset! So after talking to mum I called the normal doctors (mums idea) who I have not…

3 weeks today

Today is Stevie the Stomas 3 week birthday, yay! To think how life has changed in these three weeks. It feels like Stevie has given me my freedom back, a new quality of life and change.  Sure it's been daunting but after the ordeal before the operations and the months before this is amazing. I…

Lazy Sunday, windy and another first

Last night after a lot of tooing and throwing I got myself together and went to a friends moving in party. I luckily found a shirt, that my sister bought me, that was long enough to cover any bulges made by my catheter and managed to feel pretty normal. I painted on a face and…

Blue sky, sun and pamper – it’s saturday!

Hello world! Today I woke up with the sun shining in on me, and a beautiful blue sky! Wow how life feels easier when the sun is out! Managed the night without morphine and slept right through which was amazing! Decided to treat myself while Axel was out and have had a pamper morning -…

Monday 24th October

Monday 24th October Today the doctors came to speak to me. They said the colonoscopy showed that I had totalcolitis and that my full colon was completly inflammed, this I knew after having asked the nurses how it went after the colonoscopy on Friday. They were also concerned because I haven't been responding to the…

The last shot!

Finally take my last blood thining shot today! Thank god! I've had to take them myself for 2 weeks now and it's been hell each time! They aren't actually that painful as the needle is quiet small but mentally it's awful jamming a needle into you leg! Which by the way has been completely brushed…

Drugs, hot chocolate and mum

Had a couple of tired days now, so it's been nice just laying on the sofa relaxing, reading my book, doing some sudoku, and talking to mum and Axel when he's been here. I've finally taken my last cortisone tablet after being on it for 6 weeks. I am very happy to be off them…